Advocacy and Support

Reaching out to an advocacy or support group can help you feel connected and stay up-to-date with the latest advances in hereditary cancer. The following trusted groups may be of interest to you and have agreed to be listed here.

Alive and Kickn Logo

Alive and Kickn

Mission: to improve the lives of individuals and families affected by Lynch Syndrome and associated cancers through research, education, and screening. is a not-for-profit organization dedicated to providing the most reliable, complete, and up-to-date information about breast cancer. Their mission is to help women and their loved ones make sense of the complex medical and personal information about breast health and breast cancer, so they can make the best decisions for their lives.

Bright Pink

Bright Pink

Bright Pink is the only national non-profit focused on the prevention and early detection of breast and ovarian cancer in young women. Bright Pink is on a mission to save women's lives from breast and ovarian cancer by empowering them to live proactively at a young age.

Canadian Association of Genetic Counsellors logo

Canadian Association of Genetic Counsellors

CAGC can provide information about the benefits of genetic counseling and help you find a local genetics clinic to access a genetic counselor in Canada.


Cancer.Net® is the patient information website of the American Society of Clinical Oncology (ASCO). Cancer.Net® brings the expertise and resources of ASCO to people living with cancer and those who care for and care about them.

Genetic Information Nondiscrimination Act (GINA)

The Genetic Information Nondiscrimination Act of 2008 is a federal law that protects individuals from genetic discrimination in health insurance and employment.

Foundation For Women's Cancer logo

Foundation For Women's Cancer

The Foundation for Women's Cancer (FWC) was formed by the Society of Gynecologic Oncology (SGO) in 1991. FWC's mission, in concert with SGO, is to support research, education and public awareness of gynecologic cancer prevention, early diagnosis and optimal treatment.

Facing Our Risk of Cancer Empowered


Facing Our Risk of Cancer Empowered (FORCE) is a not-for-profit organization with a mission to improve the lives of individuals and families affected by hereditary breast and ovarian cancer.

Hereditary Colon Cancer Foundation homepage

Hereditary Colon Cancer Foundation

The Hereditary Colon Cancer Foundation is a registered 501(c)(3) nonprofit organization serving the hereditary colon cancer community by connecting patients, caregivers, and medical professionals to educational, social, and financial resources while promoting requisite research and health care initiatives. We are building this community holistically by acting as a conduit to physical and psychological care from a variety of traditional and modern health care practices.

I Have Lynch Syndrome homepage

I Have Lynch Syndrome

The mission of I Have Lynch Syndrome, Inc., is to save lives through education and raising awareness about Lynch among the global medical community and the general public.

Lynch Syndrome International homepage

Lynch Syndrome International

The primary mission of Lynch Syndrome International (LSI) is to serve our global communities by focusing on providing support for individuals afflicted with Lynch syndrome, creating public awareness of the syndrome, educating members of the general public and health care professionals and providing support for Lynch syndrome research endeavors.

National Comprehensive Cancer Network homepage

National Comprehensive Cancer Network®

The National Comprehensive Cancer Network® (NCCN®) is a not-for-profit alliance of 26 of the world's leading cancer centers dedicated to improving the quality, effectiveness, and efficiency of cancer care so that patients can live better lives.

National Society of Genetic Counselors logo

National Society of Genetic Counselors

NSGC can provide information about the benefits of genetic counseling, and help you find a local genetic counselor in the U.S.

Ovarian Cancer National Alliance

The Ovarian Cancer National Alliance is a powerful voice for everyone touched by ovarian cancer. The Alliance connects survivors, women at risk, caregivers and health providers with the information and resources they need. The Alliance also ensures that ovarian cancer is a priority for lawmakers and agencies in Washington, DC, and throughout the country. The Ovarian Cancer National Alliance helps the ovarian cancer community raise their voices on behalf of every life that has been affected by this disease.

Sharsheret Homepage


Sharsheret is a national not-for-profit organization supporting young Jewish women and their families facing breast cancer. Their mission is to offer a community of support to women, of all Jewish backgrounds, diagnosed with breast cancer or at increased genetic risk, by fostering culturally-relevant individualized connections with networks of peers, health professionals, and related resources.

Standup For The Cure Homepage

Standup For The Cure

To have a blast standup paddling (SUP) around Newport Beach CA, Muskegon MI and Miami FL while raising awareness of breast cancer and funds in support of the Susan G Komen. Every $125 we raise may save a life by enabling a mammogram!

Susan G. Komen Homepage

Susan G. Komen

To save lives and end breast cancer forever by empowering others, ensuring quality care for all and investing in science to find the cures.

Willow Breast & Hereditary Cancer Support Homepage


Willow Breast & Hereditary Cancer Support was founded in 1994 as a national, not-for-profit organization. Willow provides free-of-cost support, insight and information to anyone affected by breast cancer or hereditary cancer, including those at high risk.