Advocacy And Support

Reaching out to an advocacy or support group can help you feel connected and stay up-to-date with the latest advances for your genetic condition. The following groups have offered to be resources for you.

Canadian Association of Genetic Counsellors

CAGC can provide information about the benefits of genetic counselling and help you find a local genetics clinic to access a genetic counsellor in Canada.

Global Genes

Global Genes is a leading rare disease patient advocacy organization. The group’s mission is to eliminate the challenges of rare disease, by providing patients with educational tools, building awareness, providing critical connections to people and resources, and through investment in technologies that will positively impact affected patients and families. Recognized worldwide by the Blue Denim Genes Ribbon™, Global Genes unites experts, advocates and patients of all ages to stand together in hope for treatments and cures for the estimated 7,000 rare and genetic diseases that impact approximately 30 million Americans and over 350 million people worldwide.

National Society of Genetic Counselors

NSGC can provide information about the benefits of genetic counseling, and help you find a local genetic counselor in the U.S.