What Are My Next Steps?

Some people find having a plan and being proactive about their health empowering, while others find it causes them worry or anxiety. It is important to talk to your healthcare provider about any concerns you may have, so you can work together to find the best next steps forward for you.

You can get the most out of your visits with your healthcare providers, including specialists, if you are fully prepared. Most people want and need to have the following questions answered:

  • What type of neurological disorder do I have?
  • How will this disorder affect my health?
  • What is the treatment and what will it do?
  • How will this disorder affect my daily life and activities?
  • Would genetic testing be helpful to me and/or my family?

When answering these questions, you and your healthcare providers will be exchanging a lot of information. It often helps to have a family member or friend with you to listen, take notes, or ask questions.

Personal Medical History

Bring medical information and test results, such as lab work, x-rays, and MRIs. For radiological studies (like x-rays or MRIs), ask the specialist’s office if they prefer copies of the studies or if reports are adequate.

Your Medical Team

Bring a list of the healthcare providers you want your specialist to update about your medical condition. Be sure to include their telephone, fax number, and address.

Family Health History

Print and share your family pedigree with your current healthcare provider or other family members.

Guiding Questions

Bring this list of questions to ask your healthcare provider for additional guidance.

Other Important Information

Please click on and print any other topics (see the titles at the top of the page) on this website that you think would be helpful to have for the discussion between you and your healthcare provider.